Thursday, March 29, 2012

Being led... is a struggle

It's  been over a month since I've last posted.  There was little need to update.  All progress was positive and continuous.  


Then two weeks ago, Eva got slightly sick.  Not the flu.  2-3 days of controlled fever and a lingering cough and congestion.  Doctor even said there was nothing to fix.  This was a minor children's cold.  But for Eva, it changed things.


Over the last month, she has rocked much less.  Her vocabulary and communication has exploded!  Almost daily I have someone mention how clearly and how much she talks.  (I know.... I now have two talkers that compete for attention!)  :)  She improved her ability to color holding a crayon with control.  Started labeling colors.  Counts past 10.  Jumps like a champion kangaroo!  On and on.  


Two weeks ago, progress slowed and was replaced by intensified rocking and a new gesture: arms crossed in front of her chest and then brought up against her chest with hands open toward her neck.  She rocks and rocks.  Rocks when it is just her and her sister playing in the toy room.  Rocked when we were at ChuckECheese.  Rocks when we do school.  Rocks when watching tv.  Always rocks when I comb her hair, dress her, wipe her face.  Rocking.  Stiff.  Distant.


I cried to Rene.  'What if this doesn't end?  I love her but will others?  Will they ever see her beauty?  Her personality?  Her spunk?'


I was able to contact our Help Me Grow resource who immediately noticed Eva's new behaviors and agreed to arrange a meeting with PT/OT 'sooner rather than later'.  


I am trusting.... I really am!  I trust the Lord that this trial is for a short time.  That even should it never change, that it will bring Him glory.  Let me be clear, I LOVE MY DAUGHTER.  It is the judgment from others that is difficult.  The possible letting go of expectations, hopes, aspirations that cuts to what is most important in life.  This is where I often have to let go and press on believing God is good.